Cystic fibrosis drug funding could mean life for London woman
Read how access to this life-saving drug has given CF Champion Bonnie Brillinger new hope.
View ArticleCompany, provinces reach agreement on cystic fibrosis drug Kalydeco
Article in The Globe and Mail covering the pricing agreement for KALYDECO®.
View ArticleVertex and provinces reach agreement on Kalydeco
CBC News coverage on pricing agreement for KALYDECO®.
View ArticleWebinar: Patient/Family Advisory Board in Action
We are pleased to notify you of an upcoming presentation by the Patient/Family Advisory Board of St. Michael’s Hospital. Everyone is welcome to attend this Webex session. WHO The session is intended...
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Highlights from the 37th European Cystic Fibrosis Society (ECFS) Conference
The European Cystic Fibrosis Society (ECFS) Conference is an annual event that takes place each year in a different country in Europe. This year the host city was Gothenburg, Sweden. The conference...
View ArticleAccess to KALYDECO® in Ontario
Posted on June 20, 2014 at 4:15 pm We are pleased to share news with you that cystic fibrosis patients in Ontario with the G551D mutation now have access to Kalydeco through the Ontario Public Drug...
View ArticleVertex Phase 3 Combination Studies of Ivacaftor (KALYDECO®) and Lumacaftor...
Posted by Ken Chan, Vice President of Advocacy, Research and Healthcare on June 24, 2014 Vertex announced this morning that the Phase 3 clinical studies of ivacaftor (Kalydeco) in combination with...
View ArticleHealth Canada approves expansion of KALYDECO® for use with nine additional...
Posted by Ken Chan, Vice President, Advocacy, Research and Healthcare on June 27, 2014 Health Canada has approved Kalydeco for use by people with cystic fibrosis ages 6 and older who have one of ten...
View ArticleAccess to KALYDECO® in Alberta
Posted on July 13, 2014 We are pleased to share news with you that cystic fibrosis patients ages six and above in Alberta with the G551D mutation will now have access to Kalydeco. Kalydeco is now...
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Thank you Kin Canada – Cystic Fibrosis Canada Liaison Committee!
This past year, ten inspiring Kinsmen and Kinettes dedicated hundreds of hours to raising funds and awareness for Cystic Fibrosis Canada by motivating their fellow Kin members to take action in the...
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Congratulations to the Bill Skelly and Inaugural Ian F. McClure Award Recipients
The 2013-2014 Bill Skelly and Ian F. McClure awards were presented to Kin Canada recipients on Saturday, August 16, 2014 at Kin Canada’s National Convention during the Kin Canada and Cystic Fibrosis...
View ArticleACCESS TO KALYDECO® IN SASKATCHEWAN
We are pleased to share news with you that cystic fibrosis patients ages six and above in Saskatchewan with the G551D mutation will have access to Kalydeco beginning September 1st. Saskatchewan becomes...
View ArticleNew light on cystic fibrosis
University of Saskatchewan researchers have discovered a previously unknown immune response that could lead to new treatments for cystic fibrosis.
View ArticlePrincess Ball to help Foundation Breathe Easier
A taste of royalty is set to hit Winnipeg for a day. Cystic Fibrosis Canada’s Winnipeg chapter will hold the inaugural Princess Ball in town at the Fort Garry Hotel’s Crystal Ballroom on Nov. 16 from 1...
View ArticleCongratulations to Kin Canada!
We couldn’t be more proud of our partner for the past 50 years Kin Canada on winning the Association of Fundraising Professionals (AFP) Canada Award for Outstanding Foundation or Philanthropic Group –...
View ArticleCF patient repeatedly denied access to time saving drug
Newfoundland CF patient Bradley Tuttle and his mother Glenys are fighting for access to Tobi Podhaler. Read their story in The Telegram.
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3rd Annual Kaiden’s Classic a Huge Success!
2014 cheque presentation Kaiden’s Classic From left: Doug Anthony, President, Kin Club of Russell, Co-Chairs of Golf Committee Cindy Anthony and Helen Meinzinger, Jason Ames, father of Kaiden, Lois...
View ArticleCalgary Flames blueliner TJ Brodie shooting to help out
TJ Brodie more than doubled his career best for points last season. Even so, the Calgary Flames defenceman is looking for more of himself this coming campaign.
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